Thought I might start being ultra-brave & blogging some Narcolepsy driven dreams. My hope is that those of you who understand & have the condition understand & feel somewhat more “normal”. Those interested in learning & understanding read on……. So, after a few minor shed break ins I dream someone has disassembled the garden shed…
See the following article published by Narcolepsy UK at http://www.narcolepsy.org.uk This might be something too important to let the Department of Health check; if your child developed narcolepsy after having Pandemrix please contact Narcolepsy UK with the vaccine batch number. We will collate a response and let you know the answer as soon as possible.…
Good breakfast from Mrs Samuels in Wendover (we were offered 2nd’s but have long since moved away from full-english to simple eggs or eggs & bacon plus loads of muesli or granola!) Jenny collected our overnight bags around 08:30 & we set off on our final leg to meet the extended family on top of…
A (so far) FANTASTIC 120 donors / £5,027 raised / £5,889 with gift aid & tomorro, we travel to the start of our walk & start walking on 15/08. Please help us by donating, if you are able http://www.virgingiving.com/ridgeway or support us via this blog or twitter.
Check out Panorama tonight to see the difficulties behind claiming Employee Support Allowance / Work Capability Assessments. Try wading through the bureaucracy with narcolepsy!
With over 90 donors & almost £4,600 raised, here are a few ways in which your money could help Narcolepsy UK. Fund their website for 12 months. Fund ALL literature for clinics, hospitals, members, leading doctors and consultants. Fund a 32 page Medikidz brochure, inked by Marvel Comics see – http://www.medikidz.com/ Provide increased advocacy and support…
Check out our Ridgeway Page for details of our 87 mile route. Proceeds to the charity Narcolepsy UK.
Interesting scenario firing an arrow (rubber tipped) at a tin can on a stick in the garden. Kids archery practice has been happening all day but as I take my 2 nd shot, I hit not the can but the stick. Under 3 jubilant paces forward & I crack my head on the lawn due…
Bad dreams so set off for a practice walk with my personal trainer Another (feline) trainer specialising in training in Turkish heat… Her name is Zilli and she has accompanied me on runs, at the pool and even taken me out to restaurants!
I am aware of a £250 cheque today plus at least 2 individuals who have pledged me £100 ! Thse are fantastic figures but so are they all. Please keep up the good work
marcolipsey 